We are at the end of Day 15 and Idan got some good news today. He tested negative for the Rotavirus!!! So they lifted his isolation restrictions and he is once again allowed to walk the halls of the transplant unit and blow kisses to all the nurses. This made us all very happy. Not clear how he got rid of the virus – either it was a mistake to begin with (false positive) or his donor’s immune system cleared it (although it would be a bit early for that to happen, we know for sure that Idan’s old faulty immune system could not have cleared it this fast). Either way we are happy it’s gone.
Unfortunately, the skin rash/GvHD is still bothering him. It was very itchy all last night and neither him or Amanda got much sleep. The rash on his back comes and goes so that might be a good sign that it is a mild form of GvHD and it might clear up as his ANC comes in. We started today to treat it with a topical steroid ointment and hope that clears it up.
We are excited for the weekend as Amanda’s sisters are coming out again from NY and Idan will be very happy to see them. It will also give Amanda and I a much needed break and allow us to prepare and clean the apartment for an eventual discharge, we hope soon 🙂
Great to hear these updates… It’s amazing…so glad he is thriving in so many ways!!
Such great news to hear today! This is all wonderful and warms my heart. Idan is looking so grown up now, too. It’s like he entered the hospital a baby and will be leaving as a little boy. And he will enjoy spending time with his aunties this weekend. Love to all of you.