Day -4 was a hard one on me, but pretty smooth sailing for Idan. After spending most of the night up with him in my arms I was exhausted by the time Amanda came back to the room at 8AM. Idan took a few naps throughout the day and played the rest of it. I was lucky to be able to pop home for a quick nap in the afternoon as well while Idan got his last dose of Treosulfan chemo and the ongoing dose of Fludarabine chemo. He tolerated them well. By the time I came back they had moved us to a room with a nicer view (they said it was a better suited airflow room for Idan, but I think it had to do with Amanda’s jokingly asking the nurse that morning for a room with a view 🙂 ).
In the afternoon, Idan started his rabbit ATG, which is a powerful immunosuppressant. This is the drug the doctors told us would have the worst effect on him, making him sick and giving him flu-like symptoms. It is a slow infusion over 6 hours, and they gave him Tylenol and Benadryl first. So far he has tolerated it well. He has a few more hours and he is asleep now. Hoping it continues that way. So far Idan has also maintained his appetite and has been eating his normal food (and lots of Bamba). That is expected to change in the next few days as his counts continue to drop and his immune system completely disappears. Only thing I am really worried about tonight is later on they need to change the dressing on his central line and we hope it does not start to bleed again. I get to sleep back at the apartment tonight while Amanda stays here, hoping it is a better night than last. I hope to write a good summary of the whole transplant plan right after this post. Thanks for all your support and best wishes!
Thank you for taking the time to include us so we can know what is going on. Hope you get some rest.
One day at a time…..xoxo
wow. This is incredible for you and Idan! Hope he gets better soon. So nice to read your update everytime even though you go on without any sleep, don’t know where you get the energy to write.